A woman gently kisses a baby's forehead, with the woman's eyes closed and the baby's face turned upward. The cover text includes the author Ashley Heyburn and the title "Unexpectedly Perfect," along with a subtitle "A Mother's Memoir of Down Syndrome, Grief, and Hope."
A woman gently kisses a baby's forehead, with the woman's eyes closed and the baby's face turned upward. The cover text includes the author Ashley Heyburn and the title "Unexpectedly Perfect," along with a subtitle "A Mother's Memoir of Down Syndrome, Grief, and Hope."

UNEXPECTEDLY PERFECT

A Mother's Memoir of Down Syndrome, Grief and Hope

A person with short gray hair and earrings, wearing a white shirt, sitting at a desk with a laptop, holding their forehead and looking down in a moment of frustration or fatigue.
Ashley Heyburn's writing desk while working on Unexpectedly Perfect and The Lightwell Letter.
Ashley Heyburn editing the manuscript of Unexpectedly Perfect.

Dear Friend,

If you've found your way here because life has taken an unexpected turn...

I'm so glad you're here.

I wrote Unexpectedly Perfect for the person who has ever wondered if hope is still possible after everything changes.

For the parent grieving the future they imagined.

For the caregiver who feels unseen.

For the friend who doesn't know what to say.

For anyone learning that joy and sorrow can exist in the very same story.

This isn't a book about having all the answers.

It's a story about discovering that sometimes the unexpected can actually be a gift.

Wherever you are today, I hope these pages remind you that you don't have to walk this road alone.

With gratitude,

Signature style text reading 'Ashley Heyburn' in white on a black background.

This book is for you if...

✓ You're navigating a season you never expected.

✓ You're grieving the life you imagined.

✓ You've received difficult news.

✓ You love someone with a disability.

✓ You're searching for hope that doesn't ignore pain.

✓ You've wondered whether joy is still possible.

✓ You appreciate honest memoirs that don't tie everything up with a perfect bow.

ABOUT THE BOOK

Ashley Heyburn thought she knew what a good life looked like.

Then, within a matter of months, everything changed.

Shortly after learning she was pregnant with her second child, Ashley's mother was diagnosed with terminal cancer. Soon after, prenatal testing revealed that her unborn son had Down syndrome.

The future she had imagined disappeared almost overnight.

Unexpectedly Perfect is the honest story of learning to let go of expectations, confront fear, challenge deeply held assumptions about disability, and discover a hope she never expected to find.

With warmth, vulnerability, and surprising humor, Ashley invites readers into the messy, sacred work of grief, motherhood, faith, and transformation.

More than a memoir about Down syndrome, this is a story for anyone whose life has taken an unexpected turn, and who longs to believe that beauty can still be found there.

A family of four posing inside Findlay Market, with a woman, a man, and two young boys. They are smiling, and the man is holding one of the boys. There are signs for restrooms outside and a Findlay Market banner hanging from the ceiling.

Inside Unexpectedly Perfect, you'll find a story about...

  • Learning to let go of the life you imagined.

  • Wrestling with impossible questions.

  • Challenging assumptions about disability.

  • Discovering unexpected joy.

  • Becoming the person hardship quietly shaped you to be.

Chapter One: Unexpected News

Read the opening pages of Unexpectedly Perfect.

I had to muster every ounce of self-control to avoid vomiting on the small blue plate of cheese-and-avocado sandwich in front of me. At twelve weeks pregnant with my second child, I was deep in the throes of all the unpleasant symptoms of my first trimester—most particularly, at this moment, intense nausea. 

Standing in the kitchen, admittedly still in my pajamas at noon, I held my breath to avoid smelling anything adverse as I quickly cut Peter’s lunch into bite-sized pieces. It was hard to believe that even the simple act of making my son his lunch felt like a huge accomplishment that day. Motherhood is humbling like that. 

Since becoming pregnant again a few months before, I’d been trying to navigate my role as a full-time caretaker for my very active two-year-old amidst near-constant nausea, fatigue, heartburn, and hormonal mood swings. Most days, I felt as if I was just surviving. But despite my current misery, I knew it would all be worth it eventually. I was so grateful to be pregnant again. I’d been dreaming of growing our family and couldn’t wait to give my son a sibling. 

Setting Peter’s lunch on the table in front of him, I exhaled in relief that I had made it through the task without vomiting. As he began to eat, my cell phone rang. I didn't recognize the caller’s phone number, but I reluctantly decided to answer. 

On the other end of the line was a woman with a stiff, robotic-sounding voice. Without giving her name, she quickly introduced herself as an employee of Demeter Labs and informed me she was calling with the results of my recent genetic testing. 

With those few words, I immediately knew that this stranger had information that would have a significant influence on my future. 

I had indifferently declined genetic testing with my first pregnancy, as it seemed like an unnecessary reason to endure a blood draw, but the previous week, when the lab tech told me that taking a DNA test would tell me the sex of my baby many weeks before the standard twenty-week ultrasound, I’d quickly agreed, with no further thought. 

My heart started to race. I hadn’t expected the results to come back so quickly. I hadn’t expected to receive them over the phone. 

“Can you give me just a moment?” I asked the woman. With nervous excitement bubbling throughout my body, I turned to my son. “Mommy will be back in just a minute,” I told Peter as I eagerly headed upstairs to take the call. 

I almost tripped as I sprang up our old, creaky wooden stairs, suddenly filled with more energy than I’d had all day. Thoughts raced through my head: Would Peter have a brother or a sister? What was our growing family going to look like? Who was this baby I’d been praying for? 

“Thomas was perfect.

Just as he was.

Exactly who he was.

And if my son Thomas is perfect just as he is, so am I.”

-Unexpectedly Perfect

WHAT READERS ARE SAYING…

Whatever it is, the way you tell your story online can make all the difference.
— Quote Source
Whatever it is, the way you tell your story online can make all the difference.
— Quote Source
Whatever it is, the way you tell your story online can make all the difference.
— Quote Source
Two women sitting on a wooden bench outdoors, reading and writing in notebooks with a drink nearby.

Book Club Resources

Download (Coming soon!):

  • Discussion Guide

  • Journal Prompts

  • Prayer Guide

  • Author Q&A

  • Book Club Playlist

My hope is that when you finish Unexpectedly Perfect you....

  • See unexpected beauty with new eyes.

  • Find language for your own grief.

  • Believe that hope and heartbreak can exist together.

  • Remember the inherent dignity of every human life.

  • Feel less alone.

Your Questions, Answered

Ready to Begin?

Wherever you find yourself today, I'd be honored to share this story with you.

Ashley Heyburn writing from her home office.

Finally,

Thank you for trusting me with your heart.

You are seen here.

With love and solidarity,

Ashley Heyburn signature